Pancreatitis is caused by gallstones or alcohol. Many people are aware that too much alcohol can cause liver damage. However most people are unaware that alcohol can also cause pancreatitis. A really painful life threatening condition which I’ve have the misfortune to have.
A gallstone wreaks havoc
Regular readers will be aware of my trip to the Emergency department in an ambulance, which I wrote about here.
Turned out I had pancreatitis caused by a tiny little gallstone (which I did not know I had) travelling into my pancreas and wreaking havoc to the extent bits of my pancreas starting dying off. (Called acute necrotising pancreatitis)
Is the pancreas important?
Yes is the short answer. It converts the food we eat into fuel cells. If you can’t digest your food, without medical help you will die. Pancreatitis is an inflammation of the pancreas which reduces or stops the pancreas ability to process food. So the pancreas is essential.
I can’t breath
As well as the really severe stomach pain (think labour pains if you have ever gone through this), I now can’t breathe. This is really scary as I’ve never had lung problems. Even after major operations, I’ve never needed oxygen for more than a couple of hours. So now I get oxygen through a tube in my nose. An unwelcome partner to the drip stuck in my arm.
There’s no magic bullet treatment for pancreatitis
There’s no quick fix for pancreatitis. Treatment supports the functions of the body until the inflammation in the pancreas dies down. In my case blood tests were taken every day and depending on results, extra supplements are put in the drip.
Smelly diarrhoea
With strong pain relief, I’m able to think about eating again. The dietician explains the low fibre diet I now need. But even sticking to this, every time I eat, about 10 minutes later, I end up in severe pain on the toilet with nasty, vile smelling diarrhoea. Then an hour or two lying on the bed totally exhausted and only for the oxygen drip, I would not be able to breath.
They won’t treat the diarrhoea
The doctor says that although they can stop the diarrhoea, they need to make sure I’m not suffering from malnutrition so they won’t give me anything to stop it. So they start me on Creon tables which replace the enzymes my pancreas is no longer producing.
Learning how to breathe again
The physio starts teaching me how to breath properly again. Apparently the pain and inflammation means my stomach organs are now pressing on my lungs. I’m breathing far too shallowly and that’s why I’m so out of breath. They give me what looks like a child‘s toy and I have to breath into the tube and try and make the balls go to the top. (See picture above) The first time I can lift one ball a tiny little bit before collapsing.
Despite not being able to breath, I’m told get out of bed.
The doctor tells me, I have to stay out of bed as much as possible and walk at least four times a day. This is vital to me getting better. All I want to do is lie on the bed. However I force myself. Between the diarrhoea and total exhaustion I walk and also use the ball toy at least once every hour.
I feel really sorry for myself but think of Joanne
I feel really sorry for myself, but use a lot of visualisation. When I walk, I try to believe I’m no longer in a hospital corridor full of beeping medical equipment and really sick people. I imagine myself strong, healthy and walking in the beautiful Dublin mountains with the wind in my face and the unique smell of gorse bushes.
I also think of 21 year old Joanne O Riordan the young campaigner born without any limbs. She’s such a strong, funny, positive, feisty person. She has already helped change people lives by helping to reverse cuts to disability payments. If she can rise above the obstacles in her life so can I.
It takes two weeks
It takes a while before the right Creon dosage is reached. I still have to stay on a low fibre diet.
In total I was in hospital for two long weeks, before finally I was well enough to come home. Even then I can’t drive. I’m too weak and exhausted.
I go back in 6 weeks later to have the cause of my misery, my gallbladder removed. They only do this when the inflammation dies down. Otherwise as the surgeon says it’s like vacuuming up bits of confetti and surgery is much more complicated. In my case it was keyhole surgery and an absolute doodle compared to the pancreatitis.
8 months later
8 months later, I still have to take tablets to eat. I’ve improved as I no longer have to take a tablet for a dry snack. But any meals I have to take two tablets. Although I‘ve moved off the low fibre diet, I know certain foods will set off the diarrhoea again. No more spicy Indian meals. Even too many chocolate raisins and I’ll be rushing to the toilet. I hate being so particular about what and where I eat and having to take tablets in public when I’m in a restaurant.
The doctor tells me I’m doing really well. The mental impact will take a little longer to heal though.
Good medical treatment
I’m lucky that I got really good treatment, doctors, physios, nurses, dieticians are terrific. When I move to the private hospital, the catering manager even discusses what meals will work for me and tells me to scribble whatever I want on the daily menu, they will make it up especially for me. They all play an essential part in my recovery. But it’s sad that private health insurance is essential to treatment dignity, eating and sleeping properly. As I mentioned here I was unable to sleep in the public hospital ward due to staff testing equipment at night.
The future
The doctor says I may have to stay on these tablets for the rest of my life. Most people with a severe case like I had generally do. If I want to come off the tablets, there’s no exact formula and it’s trial and error. He recommends waiting another 2 months before even trying to reduce the dosage.
I also still find I get exhausted really quickly. But for the GP Chinese medicine specialist, I saw I don’t think I’d even have this level of energy.
Things that make a difference
I’m still optimistic, it will just take time and effort. I’m trying to do all the things that make a difference. Like sticking to a mainly healthy diet, exercise, plenty of rest, chinese medicine, and saying no to work opportunities.
I’m minding my mental health with regular mediation and remembering to remain “mindful”. I try to stay away from negative people and don’t listen to the news as much. I only watch happy or light TV programmes.
It seems to be working and it strikes me that these things are all very relevant if you’re trying to reduce your drinking.
What about alcohol though?
It’s frustrating the way the same certain questions kept getting asked over and over again. We’re all familiar with different health care professionals asking the same questions 6 or 7 times.
Only once though do they ask about my alcohol use. Even though too much alcohol causes about 25% of pancreatitis cases. As we’ve mentioned before, drinking too much alcohol is not taken seriously in our health care system.
I don’t dare drink alcohol. I don’t miss it. The memory of my illness is still too vivid. Despite my very serious illness, one or two of my friends still don’t like the fact that I don’t drink. I don’t let it get to me.
Got gallbladder stones?
Many middle aged women have gallstones. Some like me don’t even know they have them, because they have no symptoms. Gallstones are the biggest cause of pancreatitis. After that too much alcohol is the next biggest cause.
So if you have gallbladder stones, staying within the recommended drinking limits is really important.
You can find out more about these limits in our free course here.
If you want to know more about pancreatitis this link here to the NHS is good.

